DS-PACK: Tool assembly for the end-to-end support of controlled access human data sharing [* Cross-Reference *]

Version 1.0
Pinar Alper; Vilém Děd; Sascha Herzinger; Valentin Grouès; Sarah Peter; Jacek Jaroslaw Lebioda; Linda Ebermann; Marina Popleteeva; Nene Djenaba Barry; Danielle Welter; Soumyabrata Ghosh; Regina Becker; Reinhard Schneider; Wei Gu; Christophe Trefois; Venkata Satagopam, 2024, "DS-PACK: Tool assembly for the end-to-end support of controlled access human data sharing [* Cross-Reference *]", https://lore.list.lu/citation?persistentId=perma:LIST.SORAFB, LIST Open Repository, V1
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Description
The EU General Data Protection Regulation (GDPR) requirements have prompted a shift from centralised controlled access genome-phenome archives to federated models for sharing sensitive human data. In a data-sharing federation, a central node facilitates data discovery; meanwhile, distributed nodes are responsible for handling data access requests, concluding agreements with data users and providing secure access to the data. Research institutions that want to become part of such federations often lack the resources to set up the required controlled access processes. The DS-PACK tool assembly is a reusable, open-source middleware solution that semi-automates controlled access processes end-to-end, from data submission to access. Data protection principles are engraved into all components of the DS-PACK assembly. DS-PACK centralises access control management and distributes access control enforcement with support for data access via cloud-based applications. DS-PACK is in production use at the ELIXIR Luxembourg data hosting platform, combined with an operational model including legal facilitation and data stewardship. (2024-05-15)
***This entry has been automatically imported via OpenAlex by LIST harvest scripts. Please refer to https://doi.org/10.1038/s41597-024-03326-9 for the original and latest version of the publication*** (2026-07-01)
Subject Computer and Information Science; Mathematical Sciences; Physics; Social Sciences
Keyword Data access, Computer science, Access control, Data sharing, Interoperability, Cloud computing, Data management, End user, Computer network, Database, World Wide Web, Operating system
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